Become a Media Spokesperson

You can help increase public awareness and understanding of lupus by serving as a media spokesperson for lupus. Members of the news media want interesting and compelling stories about individuals whose lives have been affected by lupus. Here is your opportunity to share your story with members of the news media.

General Rules for Becoming a Media Spokesperson for Lupus

  • You must be 18 years or older. (Parents may submit a story about their child.)
  • The story must be about you, not someone else.
  • Tell about your life before you were diagnosed with lupus, the challenges you had to overcome to obtain a diagnosis, how your life has been affected by lupus, and what you believe the future may hold for you.
  • Be brief. Your story should not exceed 400 words (1,800 characters including spaces).
  • Follow the Foundation's messaging guidelines and talking points.  
  • Describe something unique about your story that others who are unfamiliar with lupus might find interesting.

We cannot guarantee that your story will be used by the news media. Use this online form to register as a spokesperson an to submit your brief story.  Provide all requested information so reporters can easily contact you.

By submitting your story, you agree to allow the Lupus Foundation of America to forward your story and personal information to members of the news media. You also agree to allow the reporter to use any of the information you provided, including your name and city/state of residence. Do not include information you wish to keep private.

Sign up as a lupus media spokesperson now